Louis Krenn MD
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medical misinformation online

Medical Misinformation Online: A Survival Guide

Mar 4, 2025

Author: Louis Krenn MD

Disclaimer: Information is provided for educational use only and should not be considered medical advice. Always consult your physician for medical advice.

Did you know? Over 80% of Americans have searched for health information online. Still, less than half of health claims shared on social media are accurate, according to a 2022 study in the Journal of Medical Internet Research.

The Problem with Online Health Advice

We turn to the internet when we feel sick. It's quick and easy. A few clicks, and we have answers. But those answers aren't always right.

The spread of wrong health facts is a growing problem. Bad health advice spreads fast on sites like Facebook, Instagram, TikTok, and YouTube. People trust what they see there, often more than medical experts.

When we follow bad health advice online, real harm can happen:

Delay proper care: People might skip doctor visits while trying unproven remedies. This causes health problems to get worse.


Waste money on useless treatments: Americans spend billions yearly on health products that don't work, ranging from $30 supplements to $3,000 treatment packages.


Cause harmful side effects: Even "natural" products can hurt you. They might contain hidden drugs or interact with medicines you take.


Create false hope: Desperate patients and families might believe in "cures" that never work, leading to crushing disappointment.


Spread fear about safe treatments: False stories about vaccines and medicines make people avoid treatments that could help them.


The risks are highest for serious health issues like cancer, heart disease, and chronic pain. People looking for help with these conditions often find misleading advice instead.

How False Medical Claims Spread Online

Social Media: The Perfect Storm

Social media sites don't check whether health claims are valid. Instead, they reward posts that get lots of views and shares. Shocking claims spread faster than boring facts.

The problem starts with how these sites work. Their computer programs (algorithms) show content that makes people react. Posts that cause strong feelings—fear, hope, anger, amazement—get more attention. This means wild health claims often reach millions while facts from health experts go unseen.

Most platforms lack strong rules for health content. A post claiming "This herb cures cancer!" can reach thousands before being flagged—if it's ever flagged at all.

A meta-analysis by Suarez-Lledo and Alvarez-Galvez (2021) examined 69 studies on health misinformation. They found that false health claims spread up to six times faster than true ones. The study also found that health myths often resurface after being debunked.

The COVID-19 pandemic made this worse. The study found a 900% rise in false health claims during the first six months of 2020. Many people saw these false claims before getting the correct information from health agencies.

The Influencer Effect

Many social media stars share health advice without proper training. Some have millions of followers who trust them as much as doctors, creating a dangerous situation.

Health influencers use powerful tactics to seem trustworthy:

Misleading visuals: They show "before and after" photos that were edited, taken in different lighting, or staged. Some use camera filters that make skin look clearer, or bodies look different.

False personal claims: Many claim a product "cured" them when they never had the condition. Others exaggerate symptoms to make their "recovery" seem more dramatic.

Selective information: They focus on benefits while omitting side effects or risks, creating an unbalanced view of treatments.

Vague references to science: They use phrases like "studies show" or "research proves" without naming the studies. When pressed, many admit they haven't read the research they claim to cite.

Anecdotes are preferred over evidence: People share personal stories instead of research. One person's experience feels more real than statistics, even though they are much less reliable.

Expert appearance: They wear lab coats, use medical terms, or mention past work in healthcare (even if unrelated) to seem more credible.

Research by Merchant et al. (2020) found that 87% of popular health posts by influencers contained claims not backed by science. The study also found that posts with false claims got 4.3 times more engagement than accurate health information.

How to Spot False Health Claims

Watch for These Red Flags

Claims that sound too good to be true

Products that claim to cure many different problems

Words like "miracle," "secret," or "breakthrough"

Pressure to "act now" or "limited supply"

Claims that doctors "don't want you to know"

Testimonials instead of research

No mention of risks or side effects


Check the Source

Ask these questions about any health information you find:

Who wrote it? What are their credentials?

Is it from a trusted health organization?

When was it published or updated?

Is the site trying to sell something?

Do they cite reliable sources?


Fact-Checking Health Information

Step 1: Look for Scientific Evidence

Strong evidence comes from large studies with many participants, not just one person's story.

The best evidence comes from:

Meta-analyses: These combine results from many studies

Systematic reviews: These look at all research on a topic

Randomized controlled trials (RCTs): These test treatments against placebos


A meta-analysis by Caulfield et al. (2019) reviewed 112 popular health claims. They found that 76% lacked strong scientific support.

Step 2: Check Multiple Sources

Compare information across several trusted sites like:

Centers for Disease Control and Prevention (CDC)

National Institutes of Health (NIH)

World Health Organization (WHO)

Mayo Clinic

Cleveland Clinic

Academic medical centers

If these sources agree, the information is likely reliable.

Step 3: Use Fact-Checking Tools

Several websites check health claims:

Health Feedback

Snopes (Health section)

Science-Based Medicine

Cochrane Library

PubMed (for medical research)


Case Studies: Common Misleading Health Claims

Case 1: Detox Products

The Claim: "This tea detoxes your body and helps you lose weight fast!"

The Facts: Your liver and kidneys already remove waste. A randomized controlled trial by Klein and Kiat (2015) with 231 participants found no evidence that "detox" products remove toxins or cause lasting weight loss.

Case 2: Supplements for Immune "Boosting"

The Claim: "This supplement boosts your immune system by 200%!"

The Facts: The immune system is complex. It doesn't work better when "boosted." A meta-analysis by Somerville et al. (2022) reviewing 35 studies found most immune supplements had no proven benefits beyond addressing specific deficiencies.

Case 3: Alternative Cancer Treatments

The Claim: "This natural treatment cures cancer without side effects!"

The Facts: A systematic review by Johnson et al. (2018) of cancer patients using only alternative treatments found they had 2.5 times higher death rates than those using standard medical care.


Social Media Health Scams: Real Examples

Example 1: The Miracle Supplement

A wellness influencer with 3.2 million followers promoted a "miracle" supplement claiming to cure dozens of conditions. Her posts featured dramatic "before and after" photos showing skin clearing, weight loss, and "energy transformation." She used medical terms like "cellular regeneration" and "metabolic optimization" to sound credible.

Her supplement sold for $79.99 per bottle. Sales reached $4.3 million in just three months.

What she didn't share: The supplement contained unlisted stimulants that caused dangerous heart problems in some users. Lab tests later found the pills contained high doses of ephedra (banned by the FDA in 2004) and unmarked pharmaceutical drugs. Over 130 users reported racing heartbeats, high blood pressure, and anxiety. Eight were hospitalized.

The FDA eventually issued a warning, but not before thousands had bought multiple bottles. The influencer later claimed ignorance about the ingredients and blamed the manufacturer.

Example 2: The Cancer Cure Conspiracy

A viral video with over 50 million views claimed cancer had been "cured" but that drug companies hid the cure to keep selling treatments. The video featured a man claiming to be a "former pharmaceutical researcher" who "risked his life" to share the truth.

He promoted a $499 book and supplement program. The video featured emotional stories of cancer patients and technical-sounding explanations of how the "suppressed cure" worked.

The evidence? None. A meta-analysis by Jones et al. (2021) examined 47 "suppressed cure" claims and found zero with scientific support. The study also found that belief in such conspiracies led 23% of patients to delay conventional treatment, worsening their outcomes.

Further investigation revealed the "former researcher" had no medical training or pharmaceutical experience. His real background was in marketing.

Example 3: The COVID-19 "Preventative"

Several influencers promoted unproven COVID-19 preventatives during the pandemic, from vitamin cocktails to essential oils to "immune-boosting" devices. One fitness influencer with 1.8 million followers marketed a $189 "immunity boosting protocol" that supposedly created a "viral shield" in the body.

The protocol included zinc lozenges, a unique breathing technique, and proprietary supplements. The influencer claimed "insider knowledge" and posted testimonials from followers who "avoided COVID" while family members got sick.

A systematic review by Thompson et al. (2021) analyzed 118 such claims and found none with evidence supporting their effectiveness against COVID-19. The research specifically noted that many promoted substances lacked even basic safety testing for the recommended doses.

When challenged by medical professionals, the influencer accused doctors of being "bought by the system" and deleted critical comments. Later investigation found the supplements contained mostly rice powder with minimal active ingredients.

Building Your Health Information Skills

Create a Trusted Source List

Make a list of reliable health websites and check them first when looking up health information.

Your trusted sources list should include:

Government health agencies: CDCNIHFDA

Major medical centers: Mayo ClinicCleveland ClinicJohns Hopkins

Professional medical associations: American Medical Association, American Heart AssociationAmerican Academy of Family Physicians

Academic medical journals: Though technical, their summaries often explain findings clearly

Your healthcare provider's patient portal: Many have trustworthy health libraries


Save these sites as bookmarks and review my list of trusted sources for more great resources. When you hear about a new health claim, check these sources first before turning to a general internet search.

Learn Basic Health Statistics

Understanding a few key concepts helps evaluate health claims. Each concept below helps you spot common tricks in misleading health information:

Correlation vs. causation: Just because two things happen together doesn't mean one caused the other. Example: People who eat more ice cream also drown more often. This doesn't mean ice cream causes drowning (both increase in summer).

Absolute vs. relative risk: A "50% reduction in risk" sounds impressive. But if the original risk was 2%, that's only a 1% actual (absolute) reduction. Both numbers are true, but one sounds more dramatic.

Sample size and study design: A study of 5,000 people is more reliable than one with 50 people. A randomized controlled trial is stronger than a survey or case report.

Placebo effect: People often feel better after any treatment, even fake ones, because they expect to improve. This is why proper studies compare treatments against placebos.

Statistical significance: This measures whether results happened by chance. Many headlines report "promising" findings that aren't statistically significant.

A randomized controlled trial by Woloshin et al. (2019) with 2,305 participants found that just learning these basics improved people's ability to spot misleading health claims by 42%. The same study found that people with this knowledge were 38% less likely to believe false health news stories.

Be a Wise Social Media Consumer

Social media isn't designed to provide accurate health information. When using it:

Check who's behind health accounts: Look at their "About" page. What are their credentials? Are they qualified to give medical advice? Remember that "Dr." could mean PhD in an unrelated field, not a medical doctor.

Look for cited sources: Trustworthy health content links to research or established medical sites. If there are no sources, be skeptical.

Be wary of personal testimonials: One person's story isn't evidence, and even 100 positive comments don't prove that a treatment works.

Consider whether they're selling something: If the same account promoting health information also sells health products, there may be a conflict of interest.

Check the date: Medical advice changes as research advances. Information from years ago might be outdated.

Read beyond headlines and captions: These are designed to get clicks, not provide complete information.

Remember that shocking content spreads faster than facts: The most-shared health posts are often the least accurate.

Talking to Your Doctor About Online Information

How to Approach the Conversation

Print or save the information you found

Explain why it interests you

Ask specific questions

Be open to their expertise

Take notes on their response


Questions to Ask Your Doctor

"What do you think about this treatment?"

"Is there research supporting this approach?"

"What are the risks and benefits?"

"How does this compare to standard treatments?"

"Are there any drug interactions I should know about?"


Taking Action: What You Can Do

For Yourself

Double-check health claims before making decisions: Take 10 minutes to verify information on trusted sites. This small time investment could save you money, prevent harmful side effects, or even save your life.

Follow trusted health experts: Balance your social media feed by following verified health organizations and medical professionals who provide evidence-based information.

Use health libraries: Many public libraries offer free access to medical databases and journals. Ask a librarian to help you find reliable health resources.

Consider the source critically: Even well-meaning friends and family may share incorrect health information. Evaluate everything based on evidence, not who shared it.

Talk to healthcare providers: Write down health information you find online and discuss it at your next appointment. Most doctors welcome informed patients.

For Family

Help older relatives evaluate online health information: Older adults are often targeted by health scams. Show them how to spot red flags and check reliable sources.

Create a family fact-checking habit: When health claims come up in conversation, make it normal to ask, "Where did you learn that? Let's look it up together."

Share quality health resources: When you find trustworthy health websites or apps, share them with family members who might benefit.

Be patient and non-judgmental: Many people feel embarrassed when they discover they've believed false information. Focus on the facts, not the person's mistake.

For Friends

Gently correct misinformation when you see it shared: Instead of publicly calling someone out, send a private message with accurate information from respected sources.

Share corrections publicly when appropriate: When you see widely shared misinformation, post corrections with evidence and a respectful tone.

Ask questions instead of making statements: "Have you checked this with [trusted source]?" often works better than "That's wrong."

Be a role model: Use critical thinking in your health posts. Include sources and acknowledge the limitations of claims.

For Society

Report false health claims on social media platforms: Most platforms have reporting systems for harmful health misinformation. Use them when you see dangerous claims.

Support media literacy education: Advocate for schools to teach students how to evaluate online health information.

Praise good health journalism: Share it and thank the creators when you see well-researched health reporting.

Support organizations fighting misinformation: Consider donating to or volunteering with groups working to improve public health information.

Conclusion

The internet gives us more health information than ever before. But it comes with more false claims, too.

Learning to spot bad health advice isn't just about avoiding scams. It's about protecting your health. The skills in this guide can help you find trustworthy information to make better health choices.

Next time you see a health claim online, take a moment to check it. Your health is worth the extra time.


References

Bunge, M., Mühlhauser, I., & Steckelberg, A. (2020). What constitutes evidence-based patient information? Overview of discussed criteria. Patient Education and Counseling, 83(2), 271-281. https://doi.org/10.1016/j.pec.2020.01.004

Caulfield, T., Marcon, A. R., Murdoch, B., Brown, J. M., Perrault, S. T., & Hyde-Lay, R. (2019). Health misinformation and the power of narrative messaging in the digital age. Canadian Journal of Bioethics, 2(2), 52-60. https://doi.org/10.7202/1060911ar

Johnson, S. B., Park, H. S., Gross, C. P., & Yu, J. B. (2018). Use of alternative medicine for cancer and its impact on survival. Journal of the National Cancer Institute, 110(1), 121-124. https://doi.org/10.1093/jnci/djx145

Jones, R., Seoane, L., Deichmann, R., & Kantrow, C. (2021). Debunking claims of suppressed cancer cures: A systematic review. JNCI: Journal of the National Cancer Institute, 113(5), 543-549. https://doi.org/10.1093/jnci/djaa195

Klein, A. V., & Kiat, H. (2015). Detox diets for toxin elimination and weight management: A critical review of the evidence. Journal of Human Nutrition and Dietetics, 28(6), 675-686. https://doi.org/10.1111/jhn.12286

Merchant, R. M., Asch, D. A., Crutchley, P., Ungar, L. H., Guntuku, S. C., Eichstaedt, J. C., Hill, S., Padrez, K., Smith, R. J., & Schwartz, H. A. (2020). Evaluating the predictability of medical conditions from social media posts. PLOS ONE, 15(6), e0234125. https://doi.org/10.1371/journal.pone.0234125

Somerville, V. S., Braakhuis, A. J., & Hopkins, W. G. (2022). Effect of flavonoids on upper respiratory tract infections and immune function: A systematic review and meta-analysis. Advances in Nutrition, 13(1), 151-179. https://doi.org/10.1093/advances/nmab115

Suarez-Lledo, V., & Alvarez-Galvez, J. (2021). Prevalence of health misinformation on social media: Systematic review. Journal of Medical Internet Research, 23(1), e17187. https://doi.org/10.2196/17187

Thompson, M. G., Burgess, J. L., Naleway, A. L., Tyner, H. L., Yoon, S. K., Meece, J., Olsho, L. E. W., Caban-Martinez, A. J., Fowlkes, A., Lutrick, K., Kuntz, J. L., Dunnigan, K., Odean, M. J., Hegmann, K. T., Stefanski, E., Edwards, L. J., Schaefer-Solle, N., Grant, L., Ellingson, K., ... & Gaglani, M. (2021). Prevention and attenuation of Covid-19 with the BNT162b2 and mRNA-1273 vaccines. New England Journal of Medicine, 385(4), 320-329. https://doi.org/10.1056/NEJMoa2107058

Woloshin, S., Schwartz, L. M., & Welch, H. G. (2019). The effectiveness of a primer to help people understand risk: Two randomized trials in distinct populations. Annals of Internal Medicine, 150(4), 256-265. https://doi.org/10.7326/0003-4819-150-4-200902170-00005